My Oncologist spelt it out clearly. He was professional, understanding and, I felt, compassionate toward my dilemma. His phone call to me was in response to my requesting a self funded further CT scan before my major Oesophagael surgery in a few weeks time.
Without medical knowledge I figured it as the only way I was going to know if my cancer tumours had reduced enough for me to make the decision surgery or no surgery. My Oncologist pointed out the danger, of another dose of ingested radiation so soon after my last scan, plus, he stated quite clearly a scan so soon would show little difference thereby leaving me with the same quandary as before alongside the addition of a sizeable credit card bill to boot. Persuasive evidence.
He was skillfully accurate as he firmly said; 'I have to make my mind up now on the evidence and facts already available' . Hmmmm!
Now; I have never doubted the skill and professionalism of the NHS during my Oesophagal cancer journey. The fact they are offering me a 'curative' option is, in this day and age of cancer complexity and commonality, nothing short of a miracle. My 'curative' NHS surgical option also has a weight of solid evidence available via Internets multiple sources and through personal attendance of survivor groups. A clear, straight forward and powerful lobby.
The downside of this major surgery is merely a compromised body and lifestyle should I be fortunate enough to become a survivor.
So the dilemma, I face is, and I freely admit to it, of my own making. But never the less it is a dilemma that has caused me (and those close to me... Nuff said!) mental lowness, anxiety but most of all frustration.
Being on the edge of huge medical breakthroughs while having on offer 'Clinical Excellence' based on historical evidence is a place cleverly designed to foster such Frustration. You, ie the medical profession, cannot move fast. The mobile phone market, on the other hand, can move fast. Their research is ongoing and live and, as we all know, causes app failure and continuing updating. But it doesn't kill people. That's why the medical world moves slower and with caution. Clinical Excellence based on historical evidence is there as an NHS discipline because it kills as few of us as possible.
For me, there is no doubt the rise of Genetics, Epigenetics and Gut Biometric science is going to revolutionise medical science and practise over the next decade or so. At present though, and in reference to cancer, such choices come under the heading of 'Alternative'. Exploring and searching for a 'Curative' option down such 'Alternative' pathways has taken me to a place familiar and recognised from my life history. A place where I am pretty good and do on the whole 'try my very best' with usually some success. I do not however; go to a place where total obsession, dedication and precise planning are prerequisite requirements. It just aint me.
What this 'Alternative' research and ongoing practice has given me is greatly increased knowledge and, I believe, a physical body in a much improved cancer fighting/surviving state. What it has not given me is enough solid evidence to enable me to be courageous enough, or to make clear enough judgement, enabling me to say no to the offered curative option of major surgery.
I am sad but not dismayed or particularly surprised by this conclusion. What I am faced with, as always, is the difficulty in now moving forward with this 'Curative' surgical option while at the same time carrying with me the frustration of never quite knowing whether my 'Alternative' had done enough in conjunction with my chemotherapy, and strict continuation of 'Alternative', to enable my rejuvenated physical systems to deal effectively with the cancer residue.
I will always be left wondering.
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